Get a load of this cool new switch activated toy Fletcher got to use in class today. I love watching his face as he figures out that he's the one whose making it move.
Recently Craig and I had a meeting with the pediatrican at TCC. Fletcher has lost 36% of his bone mass since he's been at TCC and 27% of that since last October! Dr. Brannon wants to try an infusion therapy with a drug called Pamidronate. They would do the infusion over a three day period barring that Fletcher handled it well. Pamidronate is basically Phosomax. I'm sure you've seen the commercials they use it for women with osteoporosis. They are likening Fletcher's bones to that of a 95 year old woman. The Pamidronate would promote bone strength. They'll monitor him very closely because there is a chance that it could mess up his electrolytes. We definitely don't won't his electrolytes out of whack again! Fletcher had an appointment with his endocrinologist yesterday, Dr. Domek thinks we should go for it. Basically he asked what we had to lose? Craig and I haven't made a final decision just yet. We need to pray about it and would appreciate your prayers also. Well, it's late and I need to go for now. More later...
Comments by: Anonymous
Our prayers for your decision are with you. That's a bunch of bone mass to lose! It seems that if the medicine could stave off the loss, then at least he'd be better off 3 months from now then without it. But, yes, that delicate chemical balance, that which General Jack Ripper (in that movie called Dr Strangelove) referred to as 'precious bodily fluids'...The Lord is good, faithful, and will respond to your plea for his guidance. Love you and your family lots. LOVE the videoes. Why'd you post the video of Kaleigh making an out? Not nice, NeeNee! ;) Janet
Posted: 6/11/2008 11:39:00 PM
Comments by: Ann S.
I loved Fletcher's excitement of seeing how he can affect and move his world! That is always such a neat feeling, "WOW, I did that!!!" We continue to keep your family in our prayers. Best always, A!
Posted: 6/12/2008 12:35:00 AM
Comments by: Anonymous
I want one of thoes toys, how cool!!! I understand your concern with the medicine since things have been pretty uneventful. God will give you wisdom and peace in your decision. Many Blessings. Angela
Posted: 6/12/2008 1:09:00 PM
Comments by: oda41143 Missy
Look at him! Such a smart boy. I will say an extra prayer for your tough decision making. I know it has to be hard. You'll make the right one, I'm sure of it.