Fletcher Updates

Fletcher's mother has been sending out e-mail updates to our friends and family in order to keep everyone up to date on what's happening.  Here are these updates in order from latest to earliest...

Date Subject
12/24/2007 Prayer Request
8/10/2007 Fletcher's Eye Surgery (NOT)
8/10/2007 Fletcher's Eye Surgery
6/19/2007 Blog Update
6/16/2007 Prayer Request
5/18/2007 Fletcher's Better
5/15/2007 Mother's Day & Pneumonia
4/20/2007 PicturesFletcher an 89er?
4/6/2007 Easter Egg Hunt at TCC
4/2/2007 Palm Sunday
3/30/2007 Coming Home Saturday
3/8/2007 Airway Scope Update
3/7/2007 Airway Scope
1/22/2007 NeeNee's New Blog
12/28/2006 Christmas 2006
12/20/2006 PicturesFletcher Says... Merry Christmas
10/24/2006 Two Doctors Appointments
10/21/2006 PicturesFletcher's First Shiner
10/17/2006 PicturesFletcher the Frog
10/11/2006 A Great Week...
9/25/2006 PicturesGood Ole Tent Revival and Ice Cream Social
9/20/2006 PicturesSeptember Update
8/30/2006 PicturesPneumonia Better
8/21/2006 Pneumonia Again
8/18/2006 PicturesTreble Makers Concert
8/3/2006 PicturesFamily Photos
7/15/2006 Trip to the Neurosurgeon
7/11/2006 PicturesChildren's Center Olympics
7/7/2006 PicturesFletcher Swings
7/6/2006 Pictures4th of July
7/3/2006 PicturesComing Home of 4th of July
6/29/2006 PicturesFletcher Says
6/20/2006 Fletcher's Trip Home
6/16/2006 PicturesOut of the Hospital for Nine Weeks!
5/17/2006 PicturesMore Pet Therapy
5/8/2006 PicturesAlmost 4 weeks and still out of the hospital!
4/19/2006 PicturesPet Therapy
4/18/2006 PicturesSchool Photo
4/11/2006 Fletcher Got a Port
4/10/2006 Still in the Hospital - Doing Well
4/5/2006 Back in the PICU
3/25/2006 PicturesEvaluated for PT/OT/ST
3/22/2006 Three Good Days - Physical Therapy
3/20/2006 Central Line Infection
3/15/2006 Back at Children's Center After 48 Days
3/8/2006 On Home Vent
3/3/2006 PicturesMRSA & Port - etc.
2/19/2006 Paralyzed Again
2/7/2006 Decent Unparalyzed Weekend
2/2/2006 Hospital Update
1/30/2006 Still in the Hospital
1/26/2006 Back in the Hospital Part 2
1/26/2006 Back in the Hospital
1/11/2006 PicturesChildren's Center
1/4/2006 PicturesLook who's One!
12/29/2005 Fletcher's Birthday Annoucement
12/25/2005 PicturesMerry Christmas!
12/23/2005 PicturesHolding Fletcher
12/16/2005 Trach Surgery Success
12/13/2005 PicturesTrach Scheduled
12/7/2005 Long Term Care
11/30/2005 PicturesPneumonia at Baptist
11/21/2005 Going to Baptist
11/21/2005 PicturesOff the Vent for A While
11/14/2005 Doing Well After Surgery
11/10/2005 Open Heart Surgery Was a Success!
11/9/2005 No Surgery Today
11/9/2005 Fletcher Needs Surgery Even Though He's Sick
11/3/2005 Para-Influenza So No Surgery Now
11/2/2005 Heart Cath Shows that Fletcher Will Need Surgery
11/1/2005 Heart Cath Rescheduled
10/31/2005 Heart Cath
10/28/2005 Cardiologist Follow-up and Children's
10/9/2005 PicturesHome After 41 Days!
9/28/2005 PicturesDay 29 Part 2
9/27/2005 Day 29
9/3/2005 Idiopathic Hypertrophic Subaortic Stenosis

Good morning everyone,

We had a meeting yesterday with Dr. Griggs, Fletcher had an Echo Cardio Gram and it turns out that he has a heart condition called IHSS. (Idiopathic Hypertrophic Sub aortic Stenosis) Meaning Fletcher's heart is working and pumping so hard the muscle has grown bigger and it is not allowing the blood in his heart to flow properly, therefore he is retaining fluid in his lungs. Treatment options are up in the air right now because they are not sure what his underlying problem is. There are 2 different kinds of medication he could be on, a beta blocker and a calcium channel blocker. If he truly is asthmatic then he wouldn't be able to be on the beta blocker. Surgery is also an option. So, right now the cardiologist and the pulmonologist will meet and decide what is the best way to treat him. Yesterday Craig and I sat down and decided to focus on the positive with this new diagnosis and we came up with many. It is possible that he doesn't have asthma, he won't need a traechostomy, the fluid on his lungs might mean he hasn't had pneumonia all these times, that each time he's been in the hospital has been necessary in order to come up with this diagnosis and we finally know what's wrong with him and he can be treated. We realize that a heart condition is a BIG deal and he's not completely out of the woods, but it has been so hard not knowing exactly what's wrong with him. And to be perfectly honest we can stop wondering what we're were doing wrong in taking care of him.

Fletcher is still in the PICU and on the ventilator he is having a pretty good day today. They are hoping to take him off the vent tomorrow. We will keep you posted. And of course please continue to pray for us and the doctors and nurses.

Much love,

Craig & Denise



Denise Burns
http://www.type40.com/family

9/1/2005 In the Hospital After 16 Days Home
8/17/2005 PicturesFletcher Wearing Glasses
8/12/2005 Home After 26 Days in the PICU
8/7/2005 PicturesOff the Ventilator Again
8/4/2005 Bronchoscopy and Biopsy
7/30/2005 Very Low Blood Pressure
7/23/2005 Tests Normal but Still Sick!
7/19/2005 Back in the PICU / Bronchoscope
7/13/2005 PicturesBack Home with No Answers
7/7/2005 Back in the Hospital
7/6/2005 PicturesPicture of Fletcher at Home on Oxygen
6/25/2005 Fletcher's Home on Oxygen
6/21/2005 Coming Home on Oxygen?
6/16/2005 On Oxygen and Coming off Drugs
6/13/2005 Off the Vent
6/10/2005 One the Vent Again
6/2/2005 PicturesAnother Picture at Home
6/1/2005 PicturesA Picture at Home
5/8/2005 Mother's Day Trip Home
5/4/2005 Off the Ventilator
5/2/2005 G Tube and Fundoplication
4/29/2005 Normal MRI
4/27/2005 No Eye Surgery in the PICU
4/26/2005 On the Ventilator at Baptist
4/18/2005 RSV and the NG Tube
4/3/2005 No Eye Surgery
3/15/2005 Lumbar Hernia

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Last updated on: Thursday, December 28, 2006 09:05:03 AM

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