Fletcher Updates

Fletcher's mother has been sending out e-mail updates to our friends and family in order to keep everyone up to date on what's happening.  Here are these updates in order from latest to earliest...

Date Subject
12/24/2007 Prayer Request
8/10/2007 Fletcher's Eye Surgery (NOT)
8/10/2007 Fletcher's Eye Surgery
6/19/2007 Blog Update
6/16/2007 Prayer Request
5/18/2007 Fletcher's Better
5/15/2007 Mother's Day & Pneumonia
4/20/2007 PicturesFletcher an 89er?
4/6/2007 Easter Egg Hunt at TCC
4/2/2007 Palm Sunday
3/30/2007 Coming Home Saturday
3/8/2007 Airway Scope Update
3/7/2007 Airway Scope
1/22/2007 NeeNee's New Blog
12/28/2006 Christmas 2006
12/20/2006 PicturesFletcher Says... Merry Christmas
10/24/2006 Two Doctors Appointments
10/21/2006 PicturesFletcher's First Shiner
10/17/2006 PicturesFletcher the Frog
10/11/2006 A Great Week...
9/25/2006 PicturesGood Ole Tent Revival and Ice Cream Social
9/20/2006 PicturesSeptember Update
8/30/2006 PicturesPneumonia Better
8/21/2006 Pneumonia Again
8/18/2006 PicturesTreble Makers Concert
8/3/2006 PicturesFamily Photos
7/15/2006 Trip to the Neurosurgeon
7/11/2006 PicturesChildren's Center Olympics
7/7/2006 PicturesFletcher Swings
7/6/2006 Pictures4th of July
7/3/2006 PicturesComing Home of 4th of July
6/29/2006 PicturesFletcher Says
6/20/2006 Fletcher's Trip Home
6/16/2006 PicturesOut of the Hospital for Nine Weeks!
5/17/2006 PicturesMore Pet Therapy
5/8/2006 Almost 4 weeks and still out of the hospital!

Hey everyone,
It's been almost 4 weeks since our last update. We are excited to say Fletcher is doing well. He is going to class everyday and enjoying it. He is also having speech, occupational, and physical therapy several times a week. Fletcher is getting smarter and stronger with each passing day! He is giving kisses, trying to clap his hands and says mommy and daddy in sign language! Fletcher is smiling all the time. He loves to be talked to and he loves touching faces! He is also holding his head up on his on for a limited time, but none the less it's a victory for him! He, of course has a tough road ahead of him, but he is such a trooper. All of the people who work with him are falling in love with him. Most of the staff are getting over their fear of "taking care of Fletcher"!

This week Fletcher had 2 doctors appointments (clinics). They packed him and all his gear and his entourage (which includes me, a Respitory Therapist (RT) and a driver (EMT). We were quite a site to behold. Imagine Fletcher in a car seat on a stretcher loaded down with a ventilator, canisters of oxygen, a suction machine and much more, wheeling into a doctor's office! It's really a big deal to take him to an appointment and he had TWO this week! You might remember Fletcher's right eye hasn't opened completely since birth, we have made several attempts to get him to the doctor but, he would always end up in the hospital. Well, Wednesday we FINALLY made it to the eye doctor at Dean McGee. Dr. Hildebrand looked at Fletcher's eye and doesn't want to do any surgery until he is more stable, but he said Fletcher's eye is developing normally! Fletcher and the word normal used in the same sentence! This morning Fletcher had an outpatient procedure and they placed tubes in his ears and he had a hearing test called an ABR. Well the test showed that Fletcher's hearing is fine!! He has two appointments next week, Monday he will have a CT Scan of his head. Since he's been in bed for so long the shape of his head is looking a little funky. They will look at it to make sure it's okay. Then on Thursday he will have a routine appointment with a pediatric dermatologist.

We all are doing well. Kayleigh is so looking forward to being out of school, she is also playing softball. We all are enjoying going to the ball park when it's not raining! Maddie has been pretty sick this week with strep throat. Today has been one of her better days. Craig is working hard and staying busy with our kids. I am spending 3-5 hours a day at The Center with Fletcher and the afternoons and evenings with the girls. Craig spends several hours a night with Fletcher. We can't go one day with out seeing him and getting a 'Fletcher fix'! It has been a pretty big adjustment, trying to make our situation as 'normal' as possible. It seems to be working out okay. The Lord has been so good to us and has placed some amazing people in our lives who are helping us with the girls or bringing us meals and of course we know you all are praying.

We hope this update finds you all doing well. Thanks for your faithfulness to always pray!

Much love,
Craig & Denise

I have attached a couple of picture of Fletcher on his way to school, in his class and of Easter, unfortunately we weren't able to have all three of of our kids together on Easter, due to the ban at The Center Maddie was not able to go into Fletcher's unit.









4/19/2006 PicturesPet Therapy
4/18/2006 PicturesSchool Photo
4/11/2006 Fletcher Got a Port
4/10/2006 Still in the Hospital - Doing Well
4/5/2006 Back in the PICU
3/25/2006 PicturesEvaluated for PT/OT/ST
3/22/2006 Three Good Days - Physical Therapy
3/20/2006 Central Line Infection
3/15/2006 Back at Children's Center After 48 Days
3/8/2006 On Home Vent
3/3/2006 PicturesMRSA & Port - etc.
2/19/2006 Paralyzed Again
2/7/2006 Decent Unparalyzed Weekend
2/2/2006 Hospital Update
1/30/2006 Still in the Hospital
1/26/2006 Back in the Hospital Part 2
1/26/2006 Back in the Hospital
1/11/2006 PicturesChildren's Center
1/4/2006 PicturesLook who's One!
12/29/2005 Fletcher's Birthday Annoucement
12/25/2005 PicturesMerry Christmas!
12/23/2005 PicturesHolding Fletcher
12/16/2005 Trach Surgery Success
12/13/2005 PicturesTrach Scheduled
12/7/2005 Long Term Care
11/30/2005 PicturesPneumonia at Baptist
11/21/2005 Going to Baptist
11/21/2005 PicturesOff the Vent for A While
11/14/2005 Doing Well After Surgery
11/10/2005 Open Heart Surgery Was a Success!
11/9/2005 No Surgery Today
11/9/2005 Fletcher Needs Surgery Even Though He's Sick
11/3/2005 Para-Influenza So No Surgery Now
11/2/2005 Heart Cath Shows that Fletcher Will Need Surgery
11/1/2005 Heart Cath Rescheduled
10/31/2005 Heart Cath
10/28/2005 Cardiologist Follow-up and Children's
10/9/2005 PicturesHome After 41 Days!
9/28/2005 PicturesDay 29 Part 2
9/27/2005 Day 29
9/3/2005 Idiopathic Hypertrophic Subaortic Stenosis
9/1/2005 In the Hospital After 16 Days Home
8/17/2005 PicturesFletcher Wearing Glasses
8/12/2005 Home After 26 Days in the PICU
8/7/2005 PicturesOff the Ventilator Again
8/4/2005 Bronchoscopy and Biopsy
7/30/2005 Very Low Blood Pressure
7/23/2005 Tests Normal but Still Sick!
7/19/2005 Back in the PICU / Bronchoscope
7/13/2005 PicturesBack Home with No Answers
7/7/2005 Back in the Hospital
7/6/2005 PicturesPicture of Fletcher at Home on Oxygen
6/25/2005 Fletcher's Home on Oxygen
6/21/2005 Coming Home on Oxygen?
6/16/2005 On Oxygen and Coming off Drugs
6/13/2005 Off the Vent
6/10/2005 One the Vent Again
6/2/2005 PicturesAnother Picture at Home
6/1/2005 PicturesA Picture at Home
5/8/2005 Mother's Day Trip Home
5/4/2005 Off the Ventilator
5/2/2005 G Tube and Fundoplication
4/29/2005 Normal MRI
4/27/2005 No Eye Surgery in the PICU
4/26/2005 On the Ventilator at Baptist
4/18/2005 RSV and the NG Tube
4/3/2005 No Eye Surgery
3/15/2005 Lumbar Hernia

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Last updated on: Thursday, December 28, 2006 09:05:03 AM

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